Doctor appointments

I figured that I would give everyone an update on Cam since that is why you are all reading this.

On Friday, March 28th we had Cam's first cardiology appointment since his diagnosis.  And let me tell you, I had anxiety about this appointment all week long.  I was so scared his disease was going to worsen and he was going to be hospitalized again.  Of course I let my fears and worries get the best of me.  Cam's doctor was very pleased with the progress he was making with the propanolol.  His heart rate was 117, pulse ox was 100%, and he had a normal EKG.  After the doctor came in and did the echo she said that his septum wall was still measuring 1.7cm and his gradient reading was anywhere from 54% to 77% for the duration of the echo but she did not want us to focus on the gradient as it changes so frequently.

In case you are having a hard time following, all of this is GOOD NEWS!!   I was glad to hear my fears were just that, fears.  However, leaving his appointment I expected to feel much better than I did.  I still had knots in my stomach like something, I have no clue what, but something was wrong.  Maybe it's just me wishing for a miracle, maybe it's me still thinking about the worst, or maybe I will feel this way for the rest of my life...either way, it wasn't a feeling I expected.

Cam has an appointment with the team at Texas Children's Hospital tomorrow, April 1, and I find myself feeling all of the anxiety I felt last week.  We are finally getting to meet with the experts and hear what they have to say about Camden's condition.  I am worried sick that they are going to tell us it is a lot worse than we are thinking.  Even though every other doctor has told us he is doing great, I am still worried sick.

I am hoping for the best tomorrow.  We have a long day ahead of us tomorrow with driving to Houston, and at least a 3 hour appointment with the doctors running all kinds of tests on Camden.  I hope my baby has a great day, I hope Sean and I are strong enough for each other, and I hope the doctors are able to answer all of our questions.

For now I sit, and wait, and worry...

--Heart Warrior Momma